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Statewide
Statewide Coordinator - W.N. Williams, Ph.D.
Mailing address:
UF Cranoifacial Center
1600 SW Archer Road
Gainesville, FL 32610
Telephone: 352-846-0801
Toll-free: 1-800-726-2029
FAX 352-846-1539
E-mail: Williams@dental.ufl.edu
Assistant - Lyuba
Yenatska
(Providing free educational materials and feeding supplies
for families and health care specialists.)
Office: 352-392-1635; Toll-free: 1-800-726-2029
E-mail: craniofacial@dental.ufl.edu
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Jacksonville Region
Counties: Baker, Clay, Duval, Nassau, St. Johns
Coordinator - Nikki Anson, RN
Office: 904-502-3212
FAX: 904-396-5350
E-mail: nikki.anson@jax.ufl.edu
Mailing address:
CMS Cleft Lip and Palate Clinic
Howard Building
820 Prudential Drive, Suite 405
Jacksonville, FL 32207
E-Mail: jax.cleftpalate@jax.ufl.edu
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North-Central Region
Counties: Alachua, Bradford, Brevard,
Citrus, Columbia, Dixie, Flagler, Franklin, Gadsden,
Gilchrist, Hamilton, Hernando, Jefferson, Lafayette,
Lake, Leon, Levy, Liberty, Madison, Marion, Orange,
Osceola, Putnam, Seminole, Sumter, Suwannee, Taylor,
Union, Volusia, Waculla
Coordinator - William N. Williams, Ph.D.
Telephones: 352-846-0801
Toll-free: 1-800-726-2029
FAX: 352-846-1539
E-mail: Williams@dental.ufl.edu
Mailing address:
Box 100424
UF>
Gainesville, FL 32610-0424
Assistant Coordinators in Central
Florida: Tammy Birdsong
SPECIAL SMILES
Phone: 407-658-8350
Cell: 407-222-8608
E-Mail: SpecialSmiles64@aol.com
Nicole Roberts
SPECIAL SMILES
Phone: 407-699-8575;
Cell: 407-920-5346
E-mail: mamaquad@earthlink.net
Special Smiles Toll-free: 1-888-588-4480
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South Florida Region
Counties: Broward, Collier, Dade, Indian River,
Martin, Monroe, Okeechobee, Palm Beach, St. Lucie
Coordinator - Bobby
Brasher, ARNP (Counties: Broward, Collier,
Indian River, Martin, Okeechobee, Palm Beach, St.
Lucie)
Mailing address:
Joe Dimaggio Children's Hospital Craniofacial Center
3435 Hayes Street, Hollywood, FL 33021
Ft. Lauderdale/Hollywood
Telephones: 954-986-6378, 954-986-6314
FAX: 954-965-6427
E-Mail: BBrasher@mhs.net
Assistant Coordinator
- Ann Lindahl
Mailing address:
Joe Dimaggio Children's Hospital Craniofacial Center
3435 Hayes Street, Hollywood, FL 33021
Ft. Lauderdale/Hollywood
Telephones: 954-987-2020 ext 5127
E-Mail: alindahl@mhs.net
Assistant Coordinator
- Peggy Larson, SLP
Mailing address:
P.O. Box 373
Loxahatchee, FL 33470
Telephones: 561-790-4940
E-mail:peglar00@aol.com
Coordinator - Carmen
Duque, MSN, ARNP (Counties: Dade, Monroe)
Mailing address:
Miami Children's Craniofacial Center
3100 S.W.62 Ave
Miami FL 33155-3009
Telephones: 305-662-8237
Toll-free: 1-800-662-8502
FAX: 305-663-8518
E-Mail: carmen.duque@mch.com
Assistant Coordinator
- MaryAnne Guerrero
Mailing address:
Miami Children's Craniofacial Center
3100 S.W.62 Ave
Miami FL 33155-3009
Telephones: 305-662-8237
Toll-free: 1-800-662-8502
FAX: 305-663-8518
E-Mail: Maryann.querrero@mch.com
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Tampa Bay Region
Counties: Charlotte, DeSoto, Glades, Hardee, Hendry, Highlands, Hillsborough, Lee, Manatee, Pasco, Pinellas, Polk, Sarasota.
Coordinator - Mary H. Pavan, MD
Mailing address:
All Children's Hospital, Dept.7470,
801 Sixth Street South,
St. Petersburg, FL 33701
Telephones: 727-767-6723 or 727-767- 4403
FAX: 727-767-4715
E-mail: mpavan@health.usf.edu
Assistant-coordinator - Lesia Staples
Craniofacial Social Worker Tampa- St.Petersburg
Lakeland Cleft Social Worker, CMS Tampa Bay Region
13101 N. Bruce B. Downs Blvd.
Tampa, Florida 33612
Telephones: 813-396-9783 or 1-866-300-6878
FAX: (813)396-9746
E-mail: lesia_staples@doh.state.fl.us
Assistant-coordinator - Andrea Godwin, MA, CCC/SLP and Jovanna Nogues, MS, CCC/SLP
Telephone: 813-870-4565
FAX: 813-554-8189
E-mail: godwin.andrea@gmail.com, jovanna.nogues@baycare.org
Assistant-coordinator - Dana Dickson (Sarasota)
Telephone: 941-361-6250 ext.109
Toll-free: 1-800-235-9717
FAX: 941-361-6272
E-mail: Dana_Dickson@doh.state.fl.us
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West Florida Region
Counties: Bay, Calhoun, Escambia, Gulf, Holmes,
Jackson, Okaloosa, Santa Rosa, Walton, Washington
Coordinator - Maria Lopez, RN, BSN MS
Children's Medical Services
5192 Bayou Boulevard
Pensacola, FL 32503-2102
Office: 850-484-5040 ext 1208, or
Toll-free: 800-381-3685 ext. 1208 or SunCom 690-5040, ext. 1208
FAX: 850-484-5189
E-mail: Maria_Lopez@doh.state.fl.us
Assistant Coordinator
- Frances Shell
Home: 850-476-2701
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Legal Advice on Insurance Issues
Deborah Oliver (Debbie) provides legal advice (pro bono) on insurance issues.
Deborah Oliver (Debbie) Executive Director
PO Box 751112 Las Vegas NV
89136-1112 1888-486-1209, 702-769-9264
debbie@aboutfaceusa.org
Web: aboutfaceusa.org and clefavocate.org
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Florida Family Support Organizations
Information Content
All materials provided by the listed websites are for information
purposes only and not for medical advice.
Florida Cleft Palate-Craniofacial Association: www.floridacleft.org
provides information for professionals and families about team care in Florida, as well as referrals for parent support resources.
Special Smiles: Toll-free: 1888-588-4480, 407-222-8608, 407-920-5346
E-mail: specialsmiles64@aol.com
Cleft Lip & Palate Support Group of Central Florida assists parents who have children born with cleft lip and palate in feeding, in making connections with other families, helping families to get together for sharing experiences and fun.
FACE of Sarasota (Friends for Aid, Correction, and Education of Craniofacial Disorders.
Tel: (941) 955-9250
Facing it Together: www.facingittogether.org
South Florida Family Support organization assists children and adults with craniofacial disorders resulting from birth, disease or trauma, provides funding for medical services not covered by insurance, helps families in need through a support network, and is dedicated to funding advanced research on the treatment and prevention of craniofacial disorders.
Florida Children’s Medical Services and Child Protection Teams:
www.cms-kids.com/CPTSWOffices.htm
Twenty-two teams, several with satellite offices, are available throughout the state to provide specialized assessments and services to child victims and their families. Services provided may include: medical diagnosis and evaluation, medical consultation, specialized interviewing of suspected child victims, family psychosocial assessment, nursing assessment, psychological evaluation, and multidisciplinary staffing.
Florida Department of Children and Families: www.state.fl.us/cf_web
State organization helping with food stamps, possible housing, and temporary cash assistance for needy families (TANF)
WIC of Florida: www.doh.state.fl.us/family/wic
Federally funded nutrition program for Women, Infants, and Children. WIC provides the following at no cost: healthy foods, nutrition education and counseling, breastfeeding support, and referrals for health care
Family and Community Outreach: www.firn.edu/doe/family/fcogrants/stategrants
Department of Education programs to improve student performance for at-risk students who are low-performing by providing additional learning opportunities.
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National Support Organizations
American Cleft Palate-Craniofacial Association: www.acpa-cpf.org and
Cleft Palate Foundations: http://www.cleftline.org
National Organizations serving healthcare professionals and patients and their families, operating the Cleftline: 1-800-24-CLEFT, and producing free publications. The Cleftline is an 800-toll free service providing information to callers about clefts and other craniofacial anomalies. Callers can request information about cleft palate/craniofacial teams and parent-patient support groups in their local region.
Birth Defect Research: www.birthdefects.org
Organization providing information to parents and professionals about all kinds of birth defects, resources, support groups, and environmental exposures.
Binky Patrol: Comforting Covers for Kids: www.binkypatrol.org
An organization that makes blankets and gives them away to children in need of comfort, including those who are ill, abused or experiencing trauma of any kind.
Cleft Advocate: www.cleftadvocate.org
Provides information to people with facial differences and advice for families who are fighting insurance denials for their medical care.
Exceptional Parent: www.eparent.com
Website and magazine about parenting a child or young adult with a disability or special health care need.
FACES – The National Craniofacial Association: www.faces-cranio.org
Organization assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Friendly Faces: www.friendlyfaces.org
A network of resources for individuals with facial differences, their parents, families, and friends.
Kidpower, Teenpower,Fullpower International: www.kidpower.org
Organization helping people of all ages to stay safe, act wisely and believe in themselves.
March of Dimes: www.marchofdimes.com
Organization dedicated to “improving the health of babies by preventing birth defects and infant mortality” through research, community services, education, and advocacy. It also provides individual genetic information to callers.
Operation Respect: www.dontlaugh.org
Free school curriculum designed to establish a classroom climate that reduces bullying, teasing, and violence. Curriculum options are Grades 2-5, Grades 6-8, and camps/after-school programs.
Stop Bullying Now: stopbullyingnow.hrsa.gov
Government supported program helping to understand how to discuss bullying and bullying prevention in a way that would make sense to young people, recommending ways for adults to take a stand against bullying. Website includes personal stories of people on how bullying has affected their lives and the lives of their friends and family members.
WideSmiles: www.widesmiles.org
Website providing support, inspiration, information, and networking for families everywhere who are dealing with the challenges associated with cleft lip and palate.
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All content copyright 2006 Florida Cleft and Craniofacial Network
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