Statewide
Statewide Coordinator - Lyuba Wharton, MS (Providing free educational materials and feeding supplies for families and health care specialists).
Mailing address:
Florida Cleft and Craniofacial Network
UF Department of Pediatrics
1701 SW 16 Avenue Building A
Gainesville, FL 32608
Telephone: 352-334-0709
Toll-free: 1-800-726-2029
FAX: 352-334-0245
E-mail: lwwharton@ufl.edu
Jacksonville
Jacksonville
Jacksonville Cleft Palate Team
Howard Building
820 Prudential Drive, Suite 412a
Jacksonville , FL 32207
Clinical Director: Jeffrey Goldhagen, MD
Coordinator: Nikki Anson
Phone: 904-633-0935
Fax: 904-633-0944
Email: nikki.anson@jax.ufl.edu
North Central Florida
Cocoa/Rockledge
Cocoa/Rockledge Cleft Palate Team
Children's Medical Services
2565 Judge Fran Jamieson Way
Viera, FL 32940
Director: Roxanne Johnson-Giebink, MD
Contact: Joelle McVicker, RN
Phone: 321-639-5851
Fax: 321-504-2031
Email: McVicker_Joelle@doh.state.fl.us
Gainesville
University of Florida
Craniofacial Center
Medical Director: John Nackashi, MD
Contact: Lyuba Wharton, MS
Phone: 352-334-0709
Fax: 352-334-0245
Toll-free: 1800-726-2029
Email: lwwharton@ufl.edu
Orlando/Winter Park
Central Florida Unified Cleft Palate and Craniofacial Team
CMS Orlando Office
7040 Lake Ellenor Drive
Orlando , FL 32809
Cleft Team Medical Director:
Dr. Frank Stieg
Contact: Roland Eldred (Ruck)
CMS Nursing Supervisor/Clinic Coordinator
Phone: 407-856-6525 ext. 5585
Fax: 407-858-6144
South Florida
Ft. Lauderdale
Joe DiMaggio Craniofacial Program
1150 N 35th Ave, Suite 490
Hollywood , FL 33021
Team Leader: Eric Cameron
Medical Director: Eric Stelnicki, MD
Contact: Bobby Brasher & Ann Lindahl
Phone: 954-986-6314;
954-265-6378;
954-987-2020 ext 5127
Email: BBrasher@mhs.net or
alindahl@mhs.net
Miami
The Craniofacial Center at Miami Children’s Hospital
3100 SW 62 Ave
Miami , FL 33155-3009
Director: Mislen S. Bauer, MD
Contact: Anna Pelligra
Program Coordinator: Leyna Orta
Phone: 305-662-8237
Toll-Free: 1-800-662-8502
Email: anna.pelligra@mch.com or
Website: www.mch.com
West Palm Beach
CMS Cleft Palate Clinic
5101 Greenwood Ave
West Palm Beach , FL 33407
Director: Philip Colaizzo
Contact: Micky Fleeman
Phone: 877-822-5203 ext. 2247
or 561-881-5040
Email: Margaret_Fleeman@doh.state.fl.us
Ft. Pierce
Contact: Inge Klimkiewicz, RN, MSN
Email: Inge_klimiewicz@doh.state.fl.us
Phone: 772-467-6000, ext 208
Tampa Bay
Fort Myers
CMS Cleft Lip & Palate Team
9800 South Healthpark Dr, Suite 405
Fort Myers , FL 33908
Director: Piedade Silva , MD
Contact: Rowan Levenhagen, RN
Phone: 239-433-6723 ext 157
Toll-Free: 1-800-226-3290 (in Florida only)
Fax: 239-433-6739
E-mail: rowan_levenhagen@doh.state.fl.us
Sarasota
CMS Sarasota Cleft Lip & Palate Team
6055 Rand Blvd
Sarasota , FL 34238
Director: Robert Shamsey, MD
Contact: Kim Marino, RN
Phone: 941-361-6250 x 145
Toll-Free: 1-800-235-9717 (in Florida only)
Fax: 941-361-6272
Tampa/St. Petersburg
Tampa-St. Petersburg Cleft & Craniofacial Center
13101 N. Bruce Downs Blvd
Tampa , FL 33612
Director: Mary H. Pavan, MD
Contact: Heather Soechtig, RN
Children's Medical Services
Regional Nursing Supervisor
Tampa, St. Petersburg, Lakeland
3491 Gandy Blvd. North Suite 100
St. Petersburg, Fl. 33781
Phone: 727-217-7853
FAX: 727-217-7921
Email: Heather_soechtig@doh.state.fl.us
3491 Gandy Blvd. North Suite 100
St. Petersburg, Fl. 33781
Contact: Taryl Crisp, RN, BSN
Craniofacial Nurse Care Coordinator
Phone: 727-217-7816
Toll Free within FL 1-800-336-1612
Fax: 727-217-7921
Email: taryl_crisp@doh.state.fl.us
Lakeland
Cleft Palate Team
200 N Kentucky Avenue, Suite 114
Lakeland, Fla. 33801
Director: Bill Ray, MD
Contact: Christie Dudeck, RN
Cleft/Craniofacial Nurse Care Coordinator
Phone: 800-741-2250
Fax: 863-413-3597
Email: Christie_Dudeck@doh.state.fl.us
West Florida
Pensacola
Terri Walsh, RN
5192 Bayou Blvd
Pensacola , FL 32503
Director: Phone: 1-800-381-3685 ext 1208
or
850-484-5040 ext. 1208
SunCom: 690-5040x1208
Email: Terrijane_Walsh@doh.state.fl.us
Frances Shell, Parent Advocate
Phone: 850-476-2701
Florida Family Support Organizations
Information Content: All materials provided by the listed websites are for information purposes only and not for medical advice.
Florida Cleft Palate-Craniofacial Association: www.floridacleft.org provides information for professionals and families about team care in Florida, as well as referrals for parent support resources.
Special Smiles: 407-222-8608; 407-920-5346
E-mail: specialsmiles64@aol.com
Cleft Lip & Palate Support Group of Central Florida assists parents who have children born with cleft lip and palate in feeding, in making connections with other families, helping families to get together for sharing experiences and fun.
FACE of Sarasota (Friends for Aid, Correction, and Education of Craniofacial Disorders.) Tel: (941) 955-9250
Facing it Together: www.facingittogether.org
South Florida Family Support organization assists children and adults with craniofacial disorders resulting from birth, disease or trauma, provides funding for medical services not covered by insurance, helps families in need through a support network, and is dedicated to funding advanced research on the treatment and prevention of craniofacial disorders.
Facing Forward: 850-476-2701, E-mail: seashellsgirl@aol.com
West Florida Family Support Group
Florida Children’s Medical Services and Child Protection Teams:www.cms-kids.com
Twenty-two teams, several with satellite offices, are available throughout the state to provide specialized assessments and services to child victims and their families. Services provided may include: medical diagnosis and evaluation, medical consultation, specialized interviewing of suspected child victims, family psychosocial assessment, nursing assessment, psychological evaluation, and multidisciplinary staffing.
Florida Department of Children and Families: www.state.fl.us/cf_web
State organization helping with food stamps, possible housing, and temporary cash assistance for needy families (TANF)
WIC of Florida: www.doh.state.fl.us/family/wic
Federally funded nutrition program for Women, Infants, and Children. WIC provides the following at no cost: healthy foods, nutrition education and counseling, breastfeeding support, and referrals for health care
Family and Community Outreach: http://www.fldoe.org/familybr
Department of Education programs to improve student performance for at-risk students who are low-performing by providing additional learning opportunities.
National Support Organizations
AboutFace International: www.aboutfaceinternational.org and
AboutFace USA: www.aboutfaceusa.org
Organizations providing emotional support and information to people with facial differences and their families
American Cleft Palate-Craniofacial Association: www.acpa-cpf.org and
Cleft Palate Foundations: http://www.cleftline.org
National Organizations serving healthcare professionals and patients and their families, operating the Cleftline: 1-800-24-CLEFT, and producing free publications. The Cleftline is an 800-toll free service providing information to callers about clefts and other craniofacial anomalies. Callers can request information about cleft palate/craniofacial teams and parent-patient support groups in their local region.
AmeriFace: Debbie Oliver, Executive Director, debbie@ameriface.org
Websites: www.ameriface.org, and www.cleftadvocate.org
Phone: (888) 486-1209, (702) 769-9264
Fax: (702) 341-5351
Birth Defect Research: www.birthdefects.org
Organization providing information to parents and professionals about all kinds of birth defects, resources, support groups, and environmental exposures.
Binky Patrol: Comforting Covers for Kids: www.binkypatrol.org
An organization that makes blankets and gives them away to children in need of comfort, including those who are ill, abused or experiencing trauma of any kind.
Cleft Advocate: www.cleftadvocate.org
Provides information to people with facial differences and advice for families who are fighting insurance denials for their medical care.
Exceptional Parent: www.eparent.com
Website and magazine about parenting a child or young adult with a disability or special health care need.
FACES – The National Craniofacial Association: www.faces-cranio.org
Organization assisting children and adults who have craniofacial disorders resulting from disease, accident, or birth.
Friendly Faces: www.friendlyfaces.org
A network of resources for individuals with facial differences, their parents, families, and friends.
Kidpower, Teenpower,Fullpower International: www.kidpower.org
Organization helping people of all ages to stay safe, act wisely and believe in themselves.
March of Dimes: www.marchofdimes.com
Organization dedicated to “improving the health of babies by preventing birth defects and infant mortality” through research, community services, education, and advocacy. It also provides individual genetic information to callers.
Operation Respect: www.dontlaugh.org
Free school curriculum designed to establish a classroom climate that reduces bullying, teasing, and violence. Curriculum options are Grades 2-5, Grades 6-8, and camps/after-school programs.
Stop Bullying Now: stopbullyingnow.hrsa.gov
Government supported program helping to understand how to discuss bullying and bullying prevention in a way that would make sense to young people, recommending ways for adults to take a stand against bullying. Website includes personal stories of people on how bullying has affected their lives and the lives of their friends and family members.