The Cleft Palate Foundation (CPF) is pleased to provide packets of information pertaining to a range of age groups. Please view the packet information on the CPF website http://www.cleftline.org/parents and use the category links below.

Newborns – Toddlers and Preschoolers – School-Aged Children – Teens – Adults

If you would like to receive packet information via email, or if you would like CPF to mail you complimentary hard copies of the information, please call the Cleftline at 1.800.24.CLEFT, please fill out the form on the website http://www.cleftline.org/parents

Pamphlets available from Cleft Palate Foundation

English:

Adult Patient, The. Cleft Lip and Palate. Cleft Palate Foundation, Chapel Hill, NC, 2000. 35 pgs.

Apert, Crouzon, and Other Craniosynostosis Syndromes. AboutFace, Toronto, Canada, 1997. 26 pgs.

As You Get Older. Information for Teens Born with Cleft Lip and Palate. Cleft Palate Foundation, Chapel Hill, NC, 2007. 20 pgs.

Cleft and Craniofacial Team. Team Standards Committee. American Cleft Palate-Craniofacial Association, Chapel Hill, NC, 1999. www.acpa-cpf.org. Brochure.

Cleft Palate and Hearing Loss. Cleft Palate Foundation, Chapel Hill, NC, 2008. www.cleftline.org. Brochure.

Ear Infections and Language Development. How Ear Infections and Middle Ear Fluid Might Affect your Child’s Language Development. U.S. Department of Education and American Speech-Language-Hearing Association. www.ed.gov/pubs/edpubs.html. Brochure.

Give Us a Little Time. How Babies with a Cleft Lip or Cleft Palate Can Be Breastfed. Medela AG – Special Issue, Switzerland, 1996. 31 pgs.

Guide to Children’s Dental Health, A. American Academy of Pediatrics, 2004. www.aap.org. Brochure.

Hemangiomas and Vascular Malformations. AboutFace, Toronto, Canada, 1999. 25 pgs.

Information for Adults. Cleft Palate Foundation, Chapel Hill, NC, 2008. 25 pgs.\

Is Your One-Year-Old Communicating With You? American Academy of Pediatrics, 2005. www.aap.org. Brochure.

Microtia. AboutFace, Toronto, Canada, 2001. 24 pgs.

Moebuis Syndrome. Information for Children Born with Moebius Syndrome. Cleft Palate Foundation, Chapel Hill, NC, 2004. 20 pgs.

Nasendoscopy.Information Information for children and parents wanting to know more about the procedure. Craniofacial CenterGainesville, FL, 2009. click to download

Nobody’s Perfect. Living & Growing with Children Who Have Special Needs. Nancy B. Miller Ph. D., M.S.W. Paul H. Brookes Publishing Co., Baltimore, Maryland, 2007. 307 pgs.

Parameters  For Evaluation and Treatment of Patients with Cleft Lip/Palate or Other Craniofacial Anomalies. American Cleft Palate-Craniofacial Association, Chapel Hill, NC, 2007. 32 pgs.

Providing Comprehensive Interdisciplinary Services to Patients and Their Families with Cleft Lip/Palate and Other Craniofacial Malformations. A Guide for Parents and Patients. University of Florida Craniofacial Center. www.cleft.ufl.edu. Brochure

School-Aged Child, The. Cleft Palate Foundation, Chapel Hill, NC, 2008. 27 pgs.

Stressed? Read This. American Academy of Pediatrics, 2007. www.aap.org. Brochure.

Tips for Parents of Adolescents. American Academy of Pediatrics, 2000. www.aap.org. Brochure.

Velo-Cardio-Facial Syndrome. Educational Foundation, Inc. www.VCFSEF.org. Brochure.

Videofluoroscopy. University of Florida Craniofacial Center. www.cleft.ufl.edu. Brochure.

Spanish:

Ayuda con el Oído (Help with Hearing). Cleft Palate Foundation, Chapel Hill, NC, 2008. 10 pgs.

Cirugía de la Hendidura (Cleft Surgery). Cleft Palate Foundation, Chapel Hill, NC, 2008. www.cleftline.org. Brochure.

Cuatro Primeros Años, Los (The First Four Years). Cleft Palate Foundation, Chapel Hill, NC, 2008. 16 pgs.

Desarrollando Bien el Habla (Developing Good Speech). Cleft Palate Foundation, Chapel Hill, NC, 2008. 11 pgs.

Mirada Hacia el Futuro, Una (Looking Forward). Guia para Padres de Niños con Labio Fisurado y Paladar Hendido (A Guide for Parents of the Child with Cleft Lip and Palate. Fundacion Colombiana de Rehabilitacion, 2007. 37 pgs.

Niños de Edad Escolar, Los (School-Aged Child). Cleft Palate Foundation, Chapel Hill, NC, 2008. 34 pgs.

Every Child is Perfect. Personal Roadmaps of Experiences with Clefts. Tim Nackashi. Miles of Smiles, 2007.

Feeding the Infant with Cleft Palate. Training for Parents and Professionals. G. Dixon-Wood. University of Florida, Biomedical Media Services. (Avaliable in VHS also)

Feeding your Baby. Stacy Keach. Cleft Palate Foundation, 2008.(The video can only be watched online at this link.Feeding your Baby)