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Pamphlets available from Cleft Palate Foundation

The Cleft Palate Foundation (CPF) is pleased to provide packets of information pertaining to a range of age groups. Please view the packet information on the CPF website.

If you would like to receive packet information via email, or if you would like CPF to mail you complimentary hard copies of the information, please call the Cleftline at 1.800.24.CLEFT, please fill out the form on the website.

English:

Adult Patient, The. Cleft Lip and Palate. Cleft Palate Foundation, Chapel Hill, NC, 2000. 35 pgs.

Apert, Crouzon, and Other Craniosynostosis Syndromes.AboutFace, Toronto, Canada, 1997. 26 pgs.

As You Get Older. Information for Teens Born with Cleft Lip and Palate. Cleft Palate Foundation, Chapel Hill, NC, 2008. 17 pgs.

Feeding An Infant With A Cleft. Cleft Palate Foundation, Chapel Hill, NC, 2001. 15 pgs.

Genetics and You. Information for Families. Cleft Palate Foundation, Chapel Hill, NC, 2008. 12 pgs.

Give Us a Little Time. How Babies with a Cleft Lip or Cleft Palate Can Be Breastfed. Medela AG – Special Issue, Switzerland, 1996. 31 pgs.

Help with Hearing. Cleft Palate Foundation, Chapel Hill, NC, 2008. 9 pgs.

Hemangiomas and Vascular Malformations. AboutFace, Toronto, Canada, 1999. 25 pgs.

Information for Adults. Cleft Palate Foundation, Chapel Hill, NC, 2008. 25 pgs.

Information for Teenager Born With a Cleft. Cleft Palate Foundation, Chapel Hill, NC, 1997. 12 pgs.

Microtia. AboutFace, Toronto, Canada, 2001. 24 pgs.

Moebuis Syndrome. Information for Children Born with Moebius Syndrome. Cleft Palate Foundation, Chapel Hill, NC, 2004. 20 pgs.

Nasendoscopy.Information Information for children and parents wanting to know more about the procedure. Craniofacial CenterGainesville, FL, 2009. click to download

Parameters For Evaluation and Treatment of Patients with Cleft Lip/Palate or Other Craniofacial Anomalies. American Cleft Palate-Craniofacial Association, Chapel Hill, NC, 2007. 32 pgs.

Providing Comprehensive Interdisciplinary Services to Patients and Their Families with Cleft Lip/Palate and Other Craniofacial Malformations. A Guide for Parents and Patients. University of Florida Craniofacial Center. www.cleft.ufl.edu. Brochure

School-Aged Child, The. Cleft Palate Foundation, Chapel Hill, NC, 2008. 27 pgs.

Toddlers and Preschoolers. Cleft Palate Foundation, Chapel Hill, NC, 2010. 17 pgs.

Treatment Options for Better Speech. Cleft Palate Foundation, Chapel Hill, NC, 2010. 10 pgs.

Velo-Cardio-Facial Syndrome. Educational Foundation, Inc. www.VCFSEF.org. Brochure.

Videofluoroscopy. University of Florida Craniofacial Center. www.cleft.ufl.edu. Brochure.

Your Baby's First Year. Cleft Palate Foundation, Chapel Hill, NC, 2010. 24 pgs.

Spanish:

Alimentando a su Bebe. Cleft Palate Foundation, Chapel Hill, NC, 2009. 21 pgs.

Ayuda con el Oído (Help with Hearing). Cleft Palate Foundation, Chapel Hill, NC, 2008. 10 pgs.

Cirugía de la Hendidura (Cleft Surgery). Cleft Palate Foundation, Chapel Hill, NC, 2008. www.cleftline.org. Brochure.

Desarrollando Bien el Habla (Developing Good Speech). Cleft Palate Foundation, Chapel Hill, NC, 2008. 11 pgs.

Mirada Hacia el Futuro, Una (Looking Forward). Guia para Padres de Niños con Labio Fisurado y Paladar Hendido (A Guide for Parents of the Child with Cleft Lip and Palate. Fundacion Colombiana de Rehabilitacion, 2007. 37 pgs.

Niños de Edad Escolar, Los (School-Aged Child). Cleft Palate Foundation, Chapel Hill, NC, 2008. 34 pgs.


Books

Looking Forward. A Guide for Parents of the Child with Cleft Lip and Palate. UF Craniofacial Center, 2000.

Early Moments Matter. Building Attachments: Birth-18 months. Produced in Collaboration with TV series "This emotional Life"


Video and DVD

Every Child is Perfect. Personal Roadmaps of Experiences with Clefts. Tim Nackashi. Miles of Smiles, 2007.

Feeding your Baby. Stacy Keach. Cleft Palate Foundation, 2008.(The video can only be watched online at this link. Feeding your Baby).


Fact Sheets

Fact Sheets Cleft Palate Foundation Publications
Available to print from www.cleftline.org/publications/ or order hard copies from Florida Cleft-Craniofacial Network

    Spanish versions are listed under English titles.
  • 1. Answers to Common Questions About Scars
  • 2. Respuestas a las Preguntas Más Comunes Sobres las Cicatrices
  • 3. Bonegrafting the Cleft Maxilla
  • 4. Choosing a Cleft Palate or Craniofacial Team
  • 5. Escoger un Equipo de Expertos en Paladar Hendidos o Problemas Craneofaciales
  • 6. Crouzon Syndrome (Craniofacial Dysostosis)
  • 7. Dealing with Your Insurance Company/HMO
  • 8. Dental Care for a Child with Cleft Lip and Palate
  • 9. Cuidado Dental para un Niño con Labio Hendido y Paladar Hendido
  • 10. Financial Assistance
  • 11. Información sobre Ayuda Financiera
  • 12. For Parents of Newborn Babies with Cleft Lip/Palate
  • 13. A los Padres de los Bebés Recién Nacidos con Labio Hendido (Leporino) y Paladar Hendido
  • 14. Letter to a Teacher
  • 15. Letter to the Parent of a Child with a Cleft
  • 16. Carta a los Padres de Niños con Hendiduras
  • 17. Pierre Robin Sequence
  • 18. Positional Plagiocephaly
  • 19. Preparing Your Child for Social Situations
  • 20. Replacing a Missing Tooth
  • 21. Selected Bibliography for Parents
  • 22. Speech Development
  • 23. Desarrollo del Habla
  • 24. Submucous Clefts
  • 25. Treacher Collins
  • 26. Treatment for Adults
  • 27. Tratamientos para Adultos con Labio Hendido y Paladar Hendido
  • 28. What about Breastfeeding?