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FCCN provides an array of Services and supplies for children born with cleft lip/palate or other craniofacial malformations.
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Services
Provided
With funding provided by the Florida legislature,
the Florida Cleft and Craniofacial Network (FCCN)
has developed five regions throughout the state including
West Florida, North Central, Jacksonville Area, Tampa
Bay Area, and South Florida to better serve children
born with cleft lip/palate or other craniofacial malformations
and their families.
FCCN provides an array of services and supplies including:
A toll-free "hot line" for parents and professionals
throughout the state (800-726-2029).
Educational pamphlets, books, videotapes and DVDs
on feeding techniques, genetics, treatment, etc.
Specialized feeding supplies (such as specially designed bottles and nipples).
Counseling pregnant women whose baby has been diagnosed
with a craniofacial difference.
Assisting in communication between parents of newborn
infants and hospitals, health professionals and other
families.
Offering seminars on the topics of nursing care and
feeding techniques for professionals and parents.
Providing workshops for speech-language pathologists
on diagnostic and therapeutic strategies in treating
velopharyngeal dysfunction.
Hosting annual family weekend camps: Camp Boggy Creek
in Central Florida Camp "Everyone Is A Star" on the
campus of Nova Southeastern University, Ft. Lauderdale.
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Florida Craniofacial Teams
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West Florida
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Panama City
Oral Facial Clinic
500 West 23 St.
Building G,
Suite
59
Panama City
,
FL
32405
Asst. Director: Paul Hunt, MD
Contact: Poy Bautista
Phone: 850-872-4700 ext. 128
Toll-Free: 1-800-299-4700
Fax: 850-872-4817
Email: Poy_Bautista@doh.state.fl.us
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Pensacola
CMS Cleft Palate Clinic
5192 Bayou Blvd
Pensacola
,
FL
32503
Director: Edward R. Westmark, MD
Contact: Brenda Barrett, RN
Phone: 1-800-381-9685 or
850-484-5040 ext. 1208
Fax: 850-484-5189
Email: Brenda_Barrett@doh.state.fl.us
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Tampa
Bay
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Fort
Meyers
CMS Cleft Lip & Palate Team
9800 South Healthpark Dr, Suite 405
Fort Meyers
,
FL
33908
Director:
Piedade Silva
,
MD
Contact: Patty Sullivan
Phone: 239-433-6723
Toll-Free: 1-800-226-3290
Fax: 239-433-6739
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Sarasota
CMS
Sarasota
Cleft Lip & Palate Team
6055 Rand Blvd
Sarasota
,
FL
34238
Director: Robert Shamsey, MD
Contact: Dana Dickson, RN
Phone: 941-361-6250 ext. 109
Toll-Free: 1-800-235-9717
Fax: 941-361-6272
Email: Dana_Dickson@doh.state.fl.us
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Tampa/St.
Petersburg
Tampa-St.
Petersburg
Cleft & Craniofacial Center
13101 N. Bruce Downs Blvd
Tampa
,
FL
33612
Director: Mary H. Pavan, MD
Contact: Heather Sabella
Phone: 813-396-9711
or 1-877-511-1734
Email: heather_sabella@doh.state.fl.us
Contact: Taryl Crisp, RN, BSN,
Craniofacial Nurse Care Coordinator
Phone: 727-893-2775 ext. 156
Toll Free within FL 800-336-1612 x156
Email: taryl_crisp@doh.state.fl.us
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North
Central Florida
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Cocoa/Rockledge
Cocoa/Rockledge Cleft Palate Team
Rockledge
CMS
Building
1133 Seminole Dr
Rockledge
,
FL
32955
Director: Roxanne Johnson-Giebink, MD
Contact: Luanne Hope
Phone: 321-690-3850 ext. 232
Fax: 321-690-3887
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Gainesville
University
of
Florida
Craniofacial Center
Center Director: William N. Williams, PhD
Medical Director: John Nackashi, MD
Contact: Sandra Dean, RN
Phone: 352-334-0228
Toll-free: 888-792-8882
Email: deansz@peds.ufl.edu
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Orlando/Winter Park
Orlando
Central Florida
Unified Cleft Palate and Craniofacial Team
CMS
Orlando
Office
700 Lake Ellenor Drive
Orlando
,
FL
32809
Cleft Team Medical Director:
Dr. Frank Stieg
Contact: Barbara Markham, RN
CMS Nursing Supervisor/Clinic Coordinator
Phone: 407-856-6525 ext. 147
Cell Phone: 407-222-0065
CMS Fax number: 407-858-6144
Email: Barbara_Markham@doh.state.fl.us
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Jacksonville
Jacksonville
Cleft Palate Team
Howard
Building
820 Prudential Drive,
Suite
405
Jacksonville
,
FL
32207
Clinical Director: Jeffrey Goldhagen, MD
Coordinator: Nikki Anson
Phone: 904-502-3212
Email: nikki.anson@jax.ufl.edu
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South Florida
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Ft.
Lauderdale
Joe DiMaggio Craniofacial Program
3435 Hayes St
Hollywood
,
FL
33312
Team Leader: Eric Cameron
Medical Director: Eric Stelnicki, MD
Contact: Bobby Brasher & Ann Lindahl
Phone: 954-986-6314;
954-987-2020 ext 5127
Email: BBrasher@mhs.net or
alindahl@mhs.net
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Miami
The
Craniofacial
Center
at
Miami
Children’s Hospital
3100 SW 62 Ave
Miami
,
FL
33155-3009
Director: Mislen S. Bauer, MD
Contact: Carmen R. Duque, MSN, ARNP, Program Coordinator & Maryanne Guerrero
Phone: 305-662-8237
Toll-Free: 1-800-662-8502
Email: Carmen.duque@mch.com or
Maryann.guerrero@mch.com
Website: www.mch.com
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Broward
CMS Cleft Clinic
1625 SE 3 Ave,
Suite
415
Fort Lauderdale
,
FL
33316
Contact: Sherry Sharp
Phone: 954-713-3161
Email: sherry_sharp@doh.state.fl.us
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West Palm Beach
CMS Cleft Palate Clinic
5101 Greenwood Ave
West Palm Beach
,
FL
33407
Director: Philip Colaizzo
Contact: Carol Winig
Phone: 877-822-5203
or 561-881-5040
Email: carol_winig@doh.state.fl.us
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All content copyright 2006 Florida Cleft and Craniofacial Network
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