Florida Cleft and Craniofacial Network

FCCN provides an array of Services for children born with cleft lip/palate or other craniofacial malformations.

Services Provided
Feeding Supplies
Florida Craniofacial Teams

Services Provided
With funding provided by the Florida legislature, the Florida Cleft and Craniofacial Network (FCCN) has developed five regions throughout the state including West Florida, North Central, Jacksonville Area, Tampa Bay Area, and South Florida to better serve children born with cleft lip/palate or other craniofacial malformations and their families.

FCCN provides an array of services and supplies including:

A toll-free "hot line" for parents and professionals throughout the state (800-726-2029) & "hot lines" for each region in the state.

For a limited time, Haberman bottles can be sent to families of newborns. Call (800-726-2029) for eligiblility.

Counseling pregnant women whose baby has been diagnosed with a craniofacial difference.

Assisting in communication between parents of newborn infants and hospitals, health professionals and other families.

Offering seminars on the topics of nursing care and feeding techniques for professionals and parents.

Providing workshops for speech-language pathologists on diagnostic and therapeutic strategies in treating velopharyngeal dysfunction.

Feeding Supplies

Due to financial difficulties FCCN will not be able to provide Enfamil Cleft Palate Nursers for the hospitals or families.

As long as resources last we will continue to provide the following items free of charge:

Medela Quick Clean Micro-Steam Bags (thoroughly disinfects most breastpump accessories,

bottles, nipples, pacifiers and cups)

Pigeon nipples,

Haberman bottles and nipples,

Similac orthodontic nipples

Similac premature nipple

Enfamil standard-flow soft nipple

Telephone: 352-273-9309, or toll-free 1800-726-2029
FAX to 352-846-1539,
E-mail: craniofacial@dental.ufl.edu

For more information on feeding children born with cleft lip and palate and on different feeding bottles please contact FCCN office or find more information at the Cleft Palate Foundation (CPF).

Florida Cleft Palate and Craniofacial Teams

West Florida
*Pensacola* Children’s Medical Services/Florida's Northwest Region 5192 Bayou Blvd Pensacola , FL 32503 Director: Edward R. Westmark, MD Coordinator: Maria Lopez, RN, BSN Phone: 1-800-381-3685 ext 1208 or 850-484-5040 ext. 1208 SunCom: 690-5040x1208 Fax: 850-484-5189 Email: Maria_lopez@doh.state.fl.us
Tampa Bay
*Fort Myers* CMS Cleft Lip & Palate Team 9800 South Healthpark Dr, Suite 405 Fort Meyers , FL 33908 Director: Piedade Silva , MD Contact: Sherri Marino,RN Phone: 239-433-6723 ext 157 Toll-Free: 1-800-226-3290 Fax: 239-433-6739	*Sarasota* CMS Sarasota Cleft Lip & Palate Team 6055 Rand Blvd Sarasota , FL 34238 Director: Robert Shamsey, MD Contact: Dana Dickson, RN Phone: 941-361-6250 ext. 109 Toll-Free: 1-800-235-9717 Fax: 941-361-6272 Email: Dana_Dickson@doh.state.fl.us
*Tampa/St.* *Petersburg* Tampa-St. Petersburg Cleft & Craniofacial Center 13101 N. Bruce Downs Blvd Tampa , FL 33612 Director: Mary H. Pavan, MD Contact: Heather Sabella, RN Craniofacial Program Coordinator Phone: 813-396-9711 or 1-877-511-1734 Fax: 813-396-9795 Email: heather_sabella@doh.state.fl.us 3251 3^rd Ave. North, Suite 130 St. Petersburg, Fl. 33713 Contact: Taryl Crisp, RN, BSN, Craniofacial Nurse Care Coordinator Phone: 727-893-2775 ext. 156 Toll Free within FL 800-336-1612 x156 Fax: 727-893-2484 Email: taryl_crisp@doh.state.fl.us	*Lakeland* Cleft Palate Team 4718 Old Highway 37 Lakeland, Fla. 33813 Director: Bill Ray, MD Contact: Christie Dudeck, RN Cleft/Craniofacial Nurse Care Coordinator Phone: 800-741-2250 ext 150 Fax: 863-701-1151 Email: Christie_Dudeck@doh.state.fl.us
North Central Florida
*Cocoa/Rockledge* Cocoa/Rockledge Cleft Palate Team Children's Medical Services 1133 Seminole Dr. Rockledge , FL 32955 Director: Roxanne Johnson-Giebink, MD Contact: Leanne Watkins, RN Phone: 321-690-3850 ext 206 Fax: 321-690-3887	*Gainesville* University of Florida Craniofacial Center Center Director: William N. Williams, PhD Medical Director: John Nackashi, MD Contact: Misty West Phone: 352-334-0228 Toll-free: 888-792-8882 Email: mhoffmann@dental.ufl.edu
*Orlando/Winter Park* *Orlando* Central Florida Unified Cleft Palate and Craniofacial Team CMS Orlando Office 7040 Lake Ellenor Drive Orlando , FL 32809 Cleft Team Medical Director: Dr. Frank Stieg Contact: Roland Eldred (Ruck) CMS Nursing Supervisor/Clinic Coordinator Phone: 407-856-6525 ext. 141 Cell Phone: 407-222-0065 CMS Fax number: 407-858-6144	*Jacksonville* Jacksonville Cleft Palate Team Howard Building 820 Prudential Drive, Suite 405 Jacksonville , FL 32207 Clinical Director: Jeffrey Goldhagen, MD Coordinator: Nikki Anson Phone: 904-633-0935 Fax: 904-633-0921 Email: nikki.anson@jax.ufl.edu
South Florida
*Ft. Lauderdale* Joe DiMaggio Craniofacial Program 3435 Hayes St Hollywood , FL 33312 Team Leader: Eric Cameron Medical Director: Eric Stelnicki, MD Contact: Bobby Brasher & Ann Lindahl Phone: 954-986-6314; 954-987-2020 ext 5127 Email: BBrasher@mhs.net or alindahl@mhs.net	*Miami* The Craniofacial Center at Miami Children’s Hospital 3100 SW 62 Ave Miami , FL 33155-3009 Director: Mislen S. Bauer, MD Contact: Anna Pelligra Program Coordinator: Leyna Orta Phone: 305-662-8237 Toll-Free: 1-800-662-8502 Email: Carmen.duque@mch.com or Website: www.mch.com
*Broward* CMS Cleft Clinic 1625 SE 3 Ave, Suite 415 Fort Lauderdale , FL 33316 Contact: Sherry Sharp Phone: 954-713-3161 Email: sherry_sharp@doh.state.fl.us	*West Palm Beach* CMS Cleft Palate Clinic 5101 Greenwood Ave West Palm Beach , FL 33407 Director: Philip Colaizzo Contact: Micky Fleeman Phone: 877-822-5203 ext. 2247 or 561-881-5040 Email: Margaret_Fleeman@doh.state.fl.us
*Ft. Pierce* Contact: Inge Klimkiewicz, RN, MSN Email: Inge_klimiewicz@doh.state.fl.us Phone: 772-467-6000, ext 208